Talk about Tyler
June 25th, 2010
In my dual profession as an educator and health care provider, I have worked with numerous children infected with the virus that causes AIDS. The relationships that I have had with these special kids have been gifts in my life. They have taught me so many things, but I have especially learned that great courage can be found in the smallest of packages. Let me tell you about Tyler.
Tyler was born infected with HIV: his mother was also infected. From the very beginning of his life, he was dependent on medications to enable him to survive. When he was five, he had a tube surgically inserted in a vein in his chest. This tube was connected to a pump, which he carried in a small backpack on his back. Medications were hooked up to this pump and were continuously supplied through this tube to his bloodstream. At times, he also needed supplemented oxygen to support his breathing.
This dreaded disease eventually wore down even the likes of a little dynamo like Tyler. He grew quite ill and, unfortunately, so did his HIV-infected mother. When it became apparent that he wasn’t going to survive, Tyler’s mom talked to him about death. She comforted him by telling Tyler that she was dying too, and that she would be with him soon in heaven.
A few days before his death, Tyler beckoned me over to his hospital bed and whispered, “I might die soon. I’m not scared. When I die, please dress me in red. Mom promised she’s coming to heaven, too. I’ll be playing when she gets there, and I want to make sure she can find me.”
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